When someone you love starts acting differently—losing social filters, becoming emotionally flat, or struggling to speak—it’s not just aging. It could be frontotemporal dementia, a group of brain disorders caused by degeneration in the frontal and temporal lobes, leading to changes in behavior, language, or movement. Also known as FTD, it’s the most common form of dementia in people under 60, yet it’s often mistaken for depression, Alzheimer’s, or even personality changes. Unlike Alzheimer’s, memory stays sharp at first, but personality and communication fall apart. That’s why FTD treatment isn’t about reversing damage—it’s about managing symptoms, slowing decline, and keeping people safe and connected as long as possible.
There are three main types of FTD, each needing a different approach. The behavioral variant FTD, the most common form, causes impulsivity, apathy, poor judgment, and loss of empathy. People might start spending recklessly, eating non-food items, or acting inappropriately in public. Then there’s primary progressive aphasia, where language skills vanish slowly—people forget words, mix up sentences, or struggle to understand speech. And a rarer form, progressive supranuclear palsy, a subtype that affects movement, balance, and eye control, often mimicking Parkinson’s. Each one responds differently to treatment. No drug stops FTD from progressing, but some medications help with the symptoms. SSRIs can reduce compulsive behaviors. Antipsychotics may calm aggression, though they come with serious risks. Speech therapy keeps communication alive longer. Physical therapy helps with stiffness and falls. And for families? Education is the most powerful tool.
What you won’t find in most guides are the real-world hacks that make daily life manageable. Like using picture boards when words fail. Setting up automatic bill payments before judgment slips away. Installing locks on cabinets to stop dangerous eating habits. These aren’t just tips—they’re survival strategies shaped by years of caregiver experience. The posts below pull from real cases, clinical data, and frontline advice to show you exactly what works, what doesn’t, and how to prepare for what’s coming next. You’re not alone in this. There’s a path forward, even when the road gets dark.
Posted by Ian Skaife with 2 comment(s)
Memantine is sometimes used off-label for frontotemporal dementia, but research shows no clear benefit. Learn what the evidence says, why doctors still prescribe it, and what actually helps manage symptoms.
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